project's mission

Tell as many people as possible about the problem.

Train doctors

Organize and support research

This will help to diagnose and begin treatment of complex and rare diseases earlier in people who have noticed visual impairment in themselves or their loved ones

One of the main goals of the foundation is the education of aspiring doctors.

The more doctors can diagnose retinal diseases in the early stages, the more patients can receive timely treatment

Prevent irreversible changes, help patients in difficult cases and find treatments for diseases that are currently considered incurable.

who needs help from the Foundation?

The first year after birth he had no health problems, and only after a year did the parents begin to notice that the child’s hearing was fading.

Several years after this, Dima was diagnosed with grade 4 sensorineural hearing loss and underwent several operations to install cochlear devices.

Meet Dmitry Karatysh (DIMA)

And by the age of 7, the boy’s vision began to weaken - at dusk he moved almost by touch.

Several years of examinations and only at the age of 11 doctors were able to confirm the diagnosis using a genetic test - Dima has Usher syndrome type 1.

why research is needed?

This is one of the rare hereditary diseases that is difficult to diagnose. Patients find out about it late, often in adulthood, and do not receive the maximum benefit from treatment.

As the disease progresses, it inevitably leads
to deaf-blindness.

Research opens up the possibility for us to obtain an effective treatment method in the future and help patients like Dima and hundreds of other children who are losing their hearing and vision.

Usher syndrome is incurable

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